Tragic impact of rare vomiting syndrome on woman's life: A mother's fight for awareness
A mother has opened up about the harrowing struggle her daughter endures with a rare illness that triggers uncontrollable ...
30% Of Children With Rare Diseases Die Before Fifth Birthday, Says MoHFW Official At National Conference
Around 30% of children with rare diseases die before reaching their fifth birthday because of the lack of treatment, said Dr.
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Rare Disease Day: Richmond mother turns grief into advocacy after losing son to rare disease
Donna Reynolds of Richmond knows all too well the devastating toll that a rare disease can take, not just on an individual, but on an entire family.
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$50 million clean energy project underway in Greenville County
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
Family finds rare disease diagnosis after 14-year search
MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...
Clinical trial provides hope for Mass. child with rare genetic disorder
On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...
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Detroit Lions VP raises awareness for daughter's rare disease
Like most children, Morgan enjoys games, showing off her toys, and spending some time on her tablet. But sadly, unlike most children, Morgan is living life with an ultra-rare disease. Her mother, ...
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Union Co. group raises awareness for rare diseases
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
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What Trump's order making English the official language in the US could mean
President Donald Trump is expected to sign an executive order designating English as the official language of the United ...
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Rare Disease Day highlights awareness, research efforts happening in Roanoke and New River Valley
Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In ...
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Vermont organization spotlights Rare Disease Day
Friday is Rare Disease Day, which raises awareness for rare diseases and aims to improve access to treatment and medical ...
Couple raises awareness about son's rare muscle disorder
Feb. 28 is Rare Disease Day. A County mom and dad are sharing their story in hopes of raising awareness of the uncommon ...