Patient Advocacy Initiative staff speak on Notre Dame’s Rare Disease Day event and impact for the rare disease community.
MUHIMBILI National Hospital (MNH) executive director, Prof Mohamed Janabi has emphasised the need for greater public awareness on rare diseases to help communities understand the challenges faced by ...
7h
DC News Now on MSNRare Disease Day: Richmond mother turns grief into advocacy after losing son to rare diseaseDonna Reynolds of Richmond knows all too well the devastating toll that a rare disease can take, not just on an individual, ...
5hon MSN
VIJAYAWADA: The Indian Organization for Rare Diseases (IORD) hosted the Raise the Awareness - Rare Diseases conference in ...
This World Rare Disease Day, as we celebrate the victories of brave young souls and their families, let us rally together, reiterating the message that every life, no matter how rare, is extraordinary ...
Around 30% of children with rare diseases die before reaching their fifth birthday because of the lack of treatment, said Dr.
A mother has opened up about the harrowing struggle her daughter endures with a rare illness that triggers uncontrollable ...
17h
Inquirer on MSNRare genetic condition keeps him smiling, laughing and hugging othersLaughter fills the consultation room whenever Lucas Oon, 17, is with the team managing his care – pediatric neurologist ...
James Harrison, the world’s most generous blood and plasma donor who saved 2.4 million Australian babies, has passed away at ...
President Donald Trump on Sunday amended two executive orders to exempt imports valued at less than $800 from Canada and ...
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